Anemia and hemoglobinopathies

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Thalassemia

Asia

• International Journal of Immunopathology and Pharmacology
  • Prevalence of transfusion-transmitted infections in multiple blood transfusion-dependent thalassemic patients in Asia: A systemic review [2022]

Brazil

• Revista Brasileira de Hematologia e Hemoterapia
  • Guidelines on Beta-thalassemia major – regular blood transfusion therapy: Associação Brasileira de Hematologia, Hemoterapia e Terapia Celular: project guidelines: Associação Médica Brasileira – 2016 [2016]

Canada

• CMAJ
  • Thalassemia [2020]

• Thalassemia Foundation of Canada
  • Guidelines for the Clinical Care of Patients with Thalassemia in Canada [2009]

China

• Orphanet Journal of Rare Diseases
  • Economic burden of adult patients with ß-thalassaemia major in mainland China [2023]

• Pediatric Investigation
  • Epidemiology and treatment of beta thalassemia major in China [2019]

East and South Asia

• BMC Public Health
  • Current status and trends in thalassemia burden across South, East and Southeast Asia, 1990-2021 a systematic analysis for the global burden of disease study 2021 [2024]

Europe

• European Hematology Association
  • Selecting ß-thalassemia Patients for Gene Therapy: A Decision-making Algorithm [2021]

Gulf Cooperation Council

• BioMed Research International
  • Epidemiology of Thalassemia in Gulf Cooperation Council Countries: A Systematic Review [2020]

• Orphanet Journal of Rare Diseases
  • Regional consensus opinion for the management of Beta thalassemia major in the Arabian Gulf area [2013]

India

• Indian Journal of Medical Research
  • Past, present & future scenario of thalassaemic care & control in India [2011]

• Indian Pediatrics
  • Management of Thalassemia: Blood and Beyond [2021]

• Pediatric Hematology Oncology Journal
  • Burden of thalassemia in India: The road map for control [2017]

International

• Acta Biomedica
  • Nutritional studies in patients with ß-thalassemia major: A short review [2023]

• Annals of Global Health
  • A Systematic Review and Meta-Analysis of Stature Growth Complications in ß-thalassemia Major Patients [2021]

• Annals of Medicine
  • A systematic review of adherence to iron chelation therapy among children and adolescents with thalassemia [2022]

• Blood
  • Management of chronic viral hepatitis in patients with thalassemia: recommendations from an international panel [2010]

• European Journal of Haematology
  • Changing patterns in the epidemiology of ß-thalassemia [2020]

• Health and Quality of Life Outcomes
  • The impact of chelation compliance in health outcome and health related quality of life in thalassaemia patients: a systematic review [2024]

• International Hemoglobinopathy Research Network
  • Loss-of-Function Variants in SUPT5H as Modifying Factors in Beta-Thalassemia [2024]

• Medical Journal of Malaysia
  • A systematic review on thalassaemia screening and birth reduction initiatives: cost to success [2024]

• Thalassaemia International Federation
  • Assessing Disability in Thalassaemia: A Position Statement by the Thalassaemia International Federation [2024]
  • Addressing Thalassaemia Management from Patients' Perspectives: An International Collaborative Assessment [2024]
  • 2021 Thalassaemia International Federation Guidelines for the Management of Transfusion-dependent Thalassemia [2022]
  • The changing epidemiology of the ageing thalassaemia populations: A position statement of the Thalassaemia International Federation [2020]
  • COVID-19 and thalassaemia: A position statement of the Thalassaemia International Federation [2020]
  • TIF Publications
  • Positions & Policies

Iran

• Iranian Journal of Medical Sciences
  • Prevalence of Depression among Iranian Patients with Beta-Thalassemia Major: A Systematic Review and Meta-analysis [2022]

Italy

• Blood Transfusion
  • Changing patterns of thalassaemia in Italy: a WebThal perspective [2021]

• Hematology
  • The Italian multiregional thalassemia registry: Centers characteristics, services, and patients' population [2016]

Malaysia

• Health Economics Review
  • Efficiency and management factors: finding the balance in Thalassaemia care centres [2022]

• Orphanet Journal of Rare Diseases
  • Economic burden in the management of transfusion-dependent thalassaemia patients in Malaysia from a societal perspective [2021]

Maldives

• Journal of Community Genetics
  • Falling prevalence of beta-thalassaemia and eradication of malaria in the Maldives [2011]

Middle East

• Blood Reviews
  • Management of transfusion-dependent ß-thalassemia (TDT): Expert insights and practical overview from the Middle East [2024]

New Zealand

• Starship
  • Thalassaemia

Pakistan

• Cureus
  • Prevalence of Transfusion Transmissible Infections in Beta-Thalassemia Major Patients in Pakistan: A Systematic Review [2020]

Portugal

• Acta Médica Portuguesa
  • Prevalence Rate of Thalassemia Carriers among Individuals with Microcytosis or Hypochromia in Portugal [2023]

Saudi Arabia

• Saudi Medical Journal
  • Molecular nature of alpha-globin genes in the Saudi population [2015]

South-East Asia

• International Journal of Environmental Research and Public Health
  • Prevalence of Alpha(a)-Thalassemia in Southeast Asia (2010–2020): A Meta-Analysis Involving 83,674 Subjects [2020]

Spain

• Annals of Hematology
  • Spanish registry of hemoglobinopathies and rare anemias (REHem-AR): demographics, complications, and management of patients with ß-thalassemia [2024]

Thailand

• eLife
  • Estimating the burden of a-thalassaemia in Thailand using a comprehensive prevalence database for Southeast Asia [2019]

United Kingdom

• National Institute for Health and Care Excellence
  • Exagamglogene autotemcel for treating transfusion-dependent beta-thalassaemia in people 12 years and over [2024]

• NHS England
  • Clinical commissioning statement: plerixafor use in patients with transfusion-dependent beta-thalassaemia who are eligible for treatment with exagamglogene autotemcel (ages 12 years and above) [2024]
  • Clinical commissioning policy: allogeneic haematopoietic stem cell transplantation (Allo-HSCT) for adult transfusion dependent thalassaemia [2023]

• UK Thalassaemia Society
  • Standards for the clinical care of children and adults with thalassaemia in the UK [2023]

United States

• American Family Physician
  • Alpha- and Beta-thalassemia: Rapid Evidence Review [2022]

• American Heart Association
  • Cardiovascular function and treatment in ß-thalassemia major: a consensus statement from the American Heart Association [2013]

• Centers for Disease Control and Prevention
  • Thalassemia

• Journal of Medical Economics
  • Economic and clinical burden of managing transfusion-dependent ß-thalassemia in the United States [2023]

• Journal of Pediatric Hematology/Oncology
  • Guidelines for the Standard Monitoring of Patients with Thalassemia: Report of the Thalassemia Longitudinal Cohort [2015]

• Transfusion
  • The transfusion management of beta thalassemia in the United States [2021]

{Related topics}

• Topic
  • Neonatal hematologic disorders
  • Hemoglobinopathies
  • Hematologic diseases in pregnancy
  • Anemia